mds-red-cell-uk-forum

Welcome to UK MDS Forum

MDS - Myelodysplastic Syndromes

The UK MDS Forum was established with the remit to increase the awareness of MDS through education, setting up regional MDS registries and increasing the recruitment of MDS patients to National and International trials throughout the UK. We hope that you find the web site useful and would welcome suggestions for additions to the site.

We also strongly encourage colleagues from around the UK who are interested in the clinical and scientific aspects of MDS to join The Forum and help to make it a vibrant and inclusive organisation.

Dr Sally Killick, Secretary UK MDS Forum

Latest News

Important updates on the MDS-Right Project:
Right treatment for the right patient at the right time – a crucial EU initiative

The first MDS-RIGHT multi-stakeholder meeting was held on 3 May 2017 in Valencia, Spain in conjunction with the bi-annual MDS 2017 International Symposium. It gathered more than 70 participants representing a wide range of MDS stakeholders, including medical specialists and nurses caring for MDS patients, MDS patient advocates, medical researchers and data managers, healthcare authorities, regulators, HTA experts and industry representatives.

Read More

Patient Summary

14TH INTERNATIONAL SYMPOSIUM
ON MYELODYSPLASTIC SYNDROMES

MAY 3–6, 2017 • VALENCIA, SPAIN

Read More

UK MDS Forum Education Day Latest Slides

UK MDS Forum Education Day - November 2018

 

Presentations 

(click on the links to access the presentations)
Professor Jude Fitzgibbon: Slider

MDS Call to Action

  • uk-mds-forum-01.png
  • uk-mds-forum-02.png
  • uk-mds-forum-03.png
  • uk-mds-forum-04.png

Education Grants

Winners

Matthew Cullen and Anna Gibson

IPSS-R MDS Risk Assessment Calculator

Revised International Prognostic Scoring System (IPSS-R) for Myelodysplastic Syndromes Risk Assessment Calculator

calculator

Click here

MDS Fact Sheet

MDS Factsheet for GPs General Practicioners

calculator

Click here

Varicella Vaccine in MDS

Urgent Clarification on varicella vaccine policy

Current advice from the UK MDS Forum is not to give the Live Varicella Vaccine to patients with MDS.

Please read below correspondence between Professor Salisbury and Dr George Follows, the latter on behalf of the CLL Forum, on the varicella vaccine policy.
This is an external link to the British Society for Haematology  Click here

NICE Guideline

Lenalidomide for treating myelodysplastic syndromes (MDS) associated with an isolated deletion 5q cytogenetic abnormality.

NICE logo

Click here

BCSH Guideline

This is an external  link to the home of the British Society for Haematology (BSH). 

bsh logo

Click here