Welcome to UK MDS Forum

MDS - Myelodysplastic Syndromes

The UK MDS Forum was established with the remit to increase the awareness of MDS through education, setting up regional MDS registries and increasing the recruitment of MDS patients to National and International trials throughout the UK. We hope that you find the web site useful and would welcome suggestions for additions to the site.

We also strongly encourage colleagues from around the UK who are interested in the clinical and scientific aspects of MDS to join The Forum and help to make it a vibrant and inclusive organisation.

Dr Sally Killick, Secretary UK MDS Forum

Latest News

UK MDS FORUMS Grants 2019

15th International Symposium on Myelodysplastic Syndromes 8 - 11 May Copenhagen, Denmark

The UK MDS Forum is pleased to announce that there will be two grants available for doctors and four for nurses for attendance at this meeting.

Each grant will be for £1500.

Apply here

The MDS UK Patients Group Research Grant 2019

MDS UK Patient Support Group will fully fund a PhD student for up to four years in a UK academic institution. Funding will include fees, Stipend at UKRI level including inflation at 4%, consumables and appropriate travel costs for scientific meetings. Please note that the Grant will not fund the clinical salaries of medical staff.

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UK MDS Forum Education Day Latest Slides

UK MDS Forum Education Day - November 2018



(click on the links to access the presentations)
Professor Jude Fitzgibbon: Slider

MDS Call to Action

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Paper of the Month

Effects of erythropoiesis-stimulating agents on overall survival of International Prognostic Scoring System Low/Intermediate-1 risk, transfusion-independent myelodysplastic syndrome patients: a cohort study

This letter to the editor summarises a study used to assess the impact of erythropoiesis-stimulating agents (ESA) treatment on overall survival and on the evolution of MDS into acute myeloid leukaemia.

Download Article

IPSS-R MDS Risk Assessment Calculator

Revised International Prognostic Scoring System (IPSS-R) for Myelodysplastic Syndromes Risk Assessment Calculator


Click here

MDS Fact Sheet

MDS Factsheet for GPs General Practicioners

MDS Fact Sheet

Click here

Varicella Vaccine in MDS

Urgent Clarification on varicella vaccine policy

Current advice from the UK MDS Forum is not to give the Live Varicella Vaccine to patients with MDS.

Please read below correspondence between Professor Salisbury and Dr George Follows, the latter on behalf of the CLL Forum, on the varicella vaccine policy.
This is an external link to the British Society for Haematology  Click here

NICE Guideline

Lenalidomide for treating myelodysplastic syndromes (MDS) associated with an isolated deletion 5q cytogenetic abnormality.

NICE logo

Click here

BSH Guidelines

This is an external link to the home of the British Society for Haematology (BSH). 

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Click here