mds-red-cell-uk-forum

Welcome to UK MDS Forum

MDS - Myelodysplastic Syndromes

The UK MDS Forum was established with the remit to increase the awareness of MDS through education, setting up regional MDS registries and increasing the recruitment of MDS patients to National and International trials throughout the UK. We hope that you find the web site useful and would welcome suggestions for additions to the site.

We also strongly encourage colleagues from around the UK who are interested in the clinical and scientific aspects of MDS to join The Forum and help to make it a vibrant and inclusive organisation.

Dr Sally Killick, Secretary UK MDS Forum

Latest News

UK MDS Forum guidance during COVID-19 outbreak
Issue date - 31 March 2020

COVID-19 virus is highly infectious and produces severe life-threatening pneumonia. The epidemiology is
becoming clearer, resulting in the definition of patient groups at highest risk for severe disease.
The general advice on Patient Support websites should be followed

https://mdspatientsupport.org.uk/coronavirus-mds-blood-cancer-advice/

The rapid guidance from NICE for systemic anti-cancer therapy in the COVID-19 outbreak should be followed

https://www.nice.org.uk/guidance/ng161

The UK MDS Forum proposes the following more specific guidance for the interventional management of MDS
patients during the period of highest risk from infection with COVID-19. There is a limited (or no clear) evidence
base for the majority of these recommendations which are practical and consensus in this unprecedented time
of crisis.

Download the attachment HERE

MDS Call to Action

  • uk-mds-forum-01.png
  • uk-mds-forum-02.png
  • uk-mds-forum-03.png
  • uk-mds-forum-04.png

Paper of the Month

Novel therapy for managing TP53 Mutated Myelodysplastic Syndrome

Visit our archives

IPSS-R MDS Risk Assessment Calculator

Revised International Prognostic Scoring System (IPSS-R) for Myelodysplastic Syndromes Risk Assessment Calculator

calculator

Click here

MDS Fact Sheet

MDS Factsheet for GPs General Practicioners

MDS Fact Sheet

Click here

Varicella Vaccine in MDS

Urgent Clarification on varicella vaccine policy

Current advice from the UK MDS Forum is not to give the Live Varicella Vaccine to patients with MDS.

Please read below correspondence between Professor Salisbury and Dr George Follows, the latter on behalf of the CLL Forum, on the varicella vaccine policy.
This is an external link to the British Society for Haematology  Click here

NICE Guideline

Lenalidomide for treating myelodysplastic syndromes (MDS) associated with an isolated deletion 5q cytogenetic abnormality.

NICE logo

Click here

BSH Guidelines

This is an external link to the home of the British Society for Haematology (BSH). 

BSH Logo Strapline RGB

Click here