mds-red-cell-uk-forum

Welcome to UK MDS Forum

MDS - Myelodysplastic Syndromes

The UK MDS Forum was established with the remit to increase the awareness of MDS through education, setting up regional MDS registries and increasing the recruitment of MDS patients to National and International trials throughout the UK. We hope that you find the web site useful and would welcome suggestions for additions to the site.

We also strongly encourage colleagues from around the UK who are interested in the clinical and scientific aspects of MDS to join The Forum and help to make it a vibrant and inclusive organisation.

Dr Sally Killick, Secretary UK MDS Forum

Latest News

UK MDS GRANTS 2019 MDS2019

15th International Symposium on Myelodysplastic Syndromes

8 - 11 May Copenhagen, Denmark

The UK MDS Forum is pleased to announce that there will be two grants available for doctors and four for nurses for attendance at this meeting.

Each grant will be for £1500.

Apply here 

UK MDS Forum Education Day Latest Slides

UK MDS Forum Education Day - November 2018

 

Presentations 

(click on the links to access the presentations)
Professor Jude Fitzgibbon: Slider

MDS Call to Action

  • uk-mds-forum-01.png
  • uk-mds-forum-02.png
  • uk-mds-forum-03.png
  • uk-mds-forum-04.png

Paper of the Month

Targeting TP53 Mutations in Myelodysplastic Syndromes

David Sallman, MD
Assistant Member, Malignant Hematology Department
H. Lee Moffitt Cancer Center and Research Institute, Tampa, FL

Read Here

IPSS-R MDS Risk Assessment Calculator

Revised International Prognostic Scoring System (IPSS-R) for Myelodysplastic Syndromes Risk Assessment Calculator

calculator

Click here

MDS Fact Sheet

MDS Factsheet for GPs General Practicioners

calculator

Click here

Varicella Vaccine in MDS

Urgent Clarification on varicella vaccine policy

Current advice from the UK MDS Forum is not to give the Live Varicella Vaccine to patients with MDS.

Please read below correspondence between Professor Salisbury and Dr George Follows, the latter on behalf of the CLL Forum, on the varicella vaccine policy.
This is an external link to the British Society for Haematology  Click here

NICE Guideline

Lenalidomide for treating myelodysplastic syndromes (MDS) associated with an isolated deletion 5q cytogenetic abnormality.

NICE logo

Click here

BCSH Guideline

This is an external  link to the home of the British Society for Haematology (BSH). 

bsh logo

Click here