We are updating our website

We are in the process of converting the content from our old website into the format of our new website. This is a page from our old website that will be edited and updated shortly.

We welcome your input on how to improve this page.

Please send us your comments, corrections, additions and suggestions.

 

Until then we recommend visiting our friends on UK MDS Patients Group.

 

https://mdspatientsupport.org.uk/what-is-mds/current-trials

Education Grants

Winners

Matthew Cullen and Anna Gibson

IPSS-R MDS Risk Assessment Calculator

Revised International Prognostic Scoring System (IPSS-R) for Myelodysplastic Syndromes Risk Assessment Calculator

calculator

Click here

MDS Fact Sheet

MDS Factsheet for GPs General Practicioners

calculator

Click here

Varicella Vaccine in MDS

Urgent Clarification on varicella vaccine policy

Current advice from the UK MDS Forum is not to give the Live Varicella Vaccine to patients with MDS.

Please read below correspondence between Professor Salisbury and Dr George Follows, the latter on behalf of the CLL Forum, on the varicella vaccine policy.
This is an external link to the British Society for Haematology  Click here

NICE Guideline

Lenalidomide for treating myelodysplastic syndromes (MDS) associated with an isolated deletion 5q cytogenetic abnormality.

NICE logo

Click here

BCSH Guideline

This is an external  link to the home of the British Society for Haematology (BSH). 

bsh logo

Click here