OXFORD REGION MDS SUPPORT GROUP MEETINGS

PATIENT-TO-PATIENT SUPPORT
FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES

When:      Friday, 8th March: 10.30 am - 12.30 pm
Where:     The Maggie’s Centre, Churchill Hospital, Old Road, OX3 7LE

The meeting will be co-ordinated by Kirsty Crozier, our Clinical Nurse Specialist, and further details will be published close to the meeting date.

If you intend to come by car, please park in one of the Churchill Hospital car parks, and not the one beside the Maggie’s Centre, which belongs to the neighbouring Nursery.

For more information or to confirm your attendance please contact Claudia Richards (07979 250563)

If you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack, please contact our website.

IPSS-R MDS Risk Assessment Calculator

Revised International Prognostic Scoring System (IPSS-R) for Myelodysplastic Syndromes Risk Assessment Calculator

calculator

Click here

MDS Fact Sheet

MDS Factsheet for GPs General Practicioners

MDS Fact Sheet

Click here

Varicella Vaccine in MDS

Urgent Clarification on varicella vaccine policy

Current advice from the UK MDS Forum is not to give the Live Varicella Vaccine to patients with MDS.

Please read below correspondence between Professor Salisbury and Dr George Follows, the latter on behalf of the CLL Forum, on the varicella vaccine policy.
This is an external link to the British Society for Haematology  Click here

NICE Guideline

Lenalidomide for treating myelodysplastic syndromes (MDS) associated with an isolated deletion 5q cytogenetic abnormality.

NICE logo

Click here

BSH Guidelines

This is an external link to the home of the British Society for Haematology (BSH). 

BSH Logo Strapline RGB

Click here