Dear colleague

10th International Congress on Shwachman Diamond Syndrome:

Ribosomes in health and disease

As chair of the organising committees, it is my privilege to invite you to the 10th International Congress on Shwachman Diamond Syndrome, which is being held from 6th to 9th April 2020 in Cambridge, UK.

SDS is a rare condition but it is the focus of research worldwide because of the impact it has on patients and their families and the fascinating scientific problems associated with it. The 10th International Congress on SDS continues the tradition of meeting every two years to report outstanding new research and clinical developments from around the world relevant to those with an interest in SDS and related ribosomopathies. We are delighted to have assembled an outstanding array of speakers for the 2020 Congress. A particular focus will be ribosome biogenesis. Many world leaders in this field have accepted invitations to speak.

We are proud to welcome you to the historic city of Cambridge for the 10th Congress. Scientific sessions will be held in the landscaped surroundings of Robinson College’s purpose built conference centre. The Congress also includes a gala dinner in the magnificent 16th century hall of St John’s College. Four star en suite accommodation is available for Congress attendees at Robinson College as are a punting trip on the lovely river Cam and a chance to see some of Cambridge’s outstanding sights.

The Congress would not be possible without the involvement and sponsorship of the many outstanding organisations supporting people with SDS and their families. We extend our thanks in particular to SDS UK, SDS Foundation, SDS Canada, Shwachman Diamond Project, Associazione Italiana Sindrome di Shwachman, Shwachman Syndroom Support Holland and the family of Quinlan Kohn.

We look forward to meeting you in Cambridge for a fascinating and memorable event.

Yours faithfully

Alan J Warren

Professor of Haematology

http://www.sdscongresscambridge.com

 

IPSS-R MDS Risk Assessment Calculator

Revised International Prognostic Scoring System (IPSS-R) for Myelodysplastic Syndromes Risk Assessment Calculator

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MDS Fact Sheet

MDS Factsheet for GPs General Practicioners

MDS Fact Sheet

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Varicella Vaccine in MDS

Urgent Clarification on varicella vaccine policy

Current advice from the UK MDS Forum is not to give the Live Varicella Vaccine to patients with MDS.

Please read below correspondence between Professor Salisbury and Dr George Follows, the latter on behalf of the CLL Forum, on the varicella vaccine policy.
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NICE Guideline

Lenalidomide for treating myelodysplastic syndromes (MDS) associated with an isolated deletion 5q cytogenetic abnormality.

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BSH Guidelines

This is an external link to the home of the British Society for Haematology (BSH). 

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